NAAC
Australian National Advisory Advocacy Council for ME/CFS Research
Connecting people with a passion for understanding ME/CFS through research — and translating robust findings into healthcare practice and consumer self-management.
About
A national collaboration platform for ME/CFS research
NAAC brings together researchers, consumers, carers, healthcare practitioners, service leaders, educators and policymakers across Australia. We work to strengthen the research agenda nationally and globally, and to help quality evidence reach the people who need it.
Our purpose is twofold: to be a trusted reference point for up-to-date ME/CFS research information, and to enable communication that supports relevant, high-quality, translatable research with outcomes of value to consumers, carers and governments.
Membership
Connected leaders across the research ecosystem
Our members are people who influence and advance the ME/CFS research agenda in Australia and internationally. Membership spans lived experience, clinical practice, research, education, service delivery and public policy.
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Researchers
Scientists and clinician-researchers driving discovery, diagnostics and treatment pathways.
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Consumers & carers
People with ME/CFS and those who support them, bringing lived experience to the research agenda.
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Healthcare practitioners
Clinicians translating evidence into care that respects energy limits and patient priorities.
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Educators & service leaders
People shaping training, programs and service models for better outcomes.
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Policy partners
Contributors working with state and federal systems so research informs policy of value.
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Community organisations
National and state ME/CFS organisations collaborating for awareness, advocacy and research uptake.
What we enable
Research that can be used in practice
- A shared forum for consumers, clinicians, researchers and policy leaders
- Clear pathways from robust evidence to healthcare practice and self-management
- National connection for people shaping the ME/CFS research agenda
Communities we serve
Inclusive of the people most affected by ME/CFS
NAAC works with and for communities across Australia, recognising that lived experience, culture, location and age shape how people access research, care and support.
- Females
- Males
- General community in Australia
- People from culturally and linguistically diverse backgrounds
- People in rural, regional and remote communities
- People with chronic illness, including terminal illness
- People with disabilities
- Youth — 15 to under 25
Resources
Research and community reference points
Starting points for patients, carers, practitioners and researchers seeking credible ME/CFS information and national advocacy partners.
- ME/CFS Australia National peak body for patient-led ME/CFS charities — advocacy, education and collaboration.
- Emerge Australia Information, support and education for people living with ME/CFS and related conditions.
- NHMRC Australia’s national health and medical research agency — guidelines, funding and research policy.
- CDC — ME/CFS Public health overview of myalgic encephalomyelitis / chronic fatigue syndrome.
- NICE NG206 UK clinical guideline on diagnosis and management of ME/CFS — widely referenced internationally.
- ACNC Charity Register Australian Charities and Not-for-profits Commission — charity reporting and public information.
Contact
Speak with NAAC
For collaboration, information requests or organisational enquiries, email our team. We welcome researchers, practitioners, consumers, carers and community partners.
Please allow time for a response — many of our contributors live with ME/CFS or support someone who does.
Send an email