For Consumers

It is well recognised that people with ME/CFS do not have access to appropriate health care for a number of reasons. The least of these is the lack of robust research outcomes that can be turned into practical recommendations for clinical practice that brings benefits for consumers and the public. 

 

Australia’s National Health and Medical Research Council (NHMRC) recognises that “involving consumers and community members can add value to health and medical research and they have a right and a responsibility to do so.” ¹ 

 

Research priorities can be informed by the lived experience of people with ME/CFS, their carers and community perspectives thereby increasing community and public relevance of research. Communities and consumers can develop a better understanding of research through involvement thereby increasing opportunities to improve the quality of research and promote trust in scientific findings.  

 

One of NAAC’s objectives is to increase the capacity of consumers to be involved in ME/CFS research through knowledge and skill development in research training for consumers. 

 

More information can be found on the NHMRC publications tab on the homepage top menu  

 

If you are a consumer wanting to find out more about the NAAC research training program for consumers please get in touch through the Get Involved button at the bottom of the home page 

 

This page will continue to be developed as NAAC evolves. 

 

 

¹Statement on Consumer and Community involvement in Health and Medical Research, National Health and Medical Research Council (2016), Consumers Health Forum of Australia. p.2.